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AGS-Eltern- und Patienteninitiative e.V.AGS-Eltern- und Patienteninitiative e.V.AGS-Eltern- und Patienteninitiative e.V.
  • What is CAH?
    • General Information
    • Hormone Production of the Healthy Adrenal Gland
    • What Happens in CAH?
  • Emergency
    • Illnesses, accidents, and surgical procedures
    • Emergency kit
    • Adrenal crisis
  • Infancy
    • Diagnosis through newborn screening
    • Treatment of infants with CAH
    • Salt-wasting CAH
    • Tendency toward hypoglycemia in CAH
    • Specific aspects of diagnosing CAH in girls (surgery in early childhood)
    • Psychological support
    • Openness about the condition
  • Childhood
    • Treatment of CAH
    • Signs of Inadequate Hydrocortisone Adjustment
    • Therapy Monitoring
    • Laboratory Tests
    • Fear of Injections
  • Adolescents
    • CAH with Salt Wasting
    • CAH and Sports
    • Specific Considerations for Girls with CAH
    • Specific Considerations for Boys with CAH
    • Check-up Examinations / Treatment Plan
    • Medication Adjustment When Traveling Across Time Zones
    • School
  • (Young) Adults
    • Preventive Checkups
    • Transition
    • Family Planning
    • Heritability
    • Molecular Genetic Testing in CAH
    • Fertility as a Person Affected by CAH
    • From a Medical Perspective: Fertility in Women with CAH
    • From a Medical Perspective: Fertility in Men with CAH
  • Late Onset

Useful Links

  • Endo-ERN: Patienteninformationsmaterialien in verschiedenen Sprachen
  • Endo-ERN: Reference Kliniken/Zentren (Nr. 1 und 7 behandeln AGS (CAH))
  • AdrenalNET: Adrenal-APP
  • AdrenalNET: Animationen
  • AdrenalNET: Notfallspritze
  • AdrenalNET: Europäische Notfallkarte
  • Se-atlas – Versorgungsatlas für Menschen mit Seltenen Erkrankungen
  • Deutsche Gesellschaft für Endokrinologie
  • Leitlinien

Downloads

  • Notfallmaßnahmen für Kinder mit AGS
  • Broschüre der AGS Initiative

 

  • Transparenzerklärung 2023
  • Transparenzerklärung 2022
  • Transparenzerklärung 2021

 

  • Aufnahmeformular

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If you have any further questions, please do not hesitate to contact us! We are happy to assist you.

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Whether you have questions about diagnostic procedures, treatment options, family planning, or other relevant topics, we are here to help you. Simply contact us by phone, email, or through the contact form on our website. We will get back to you as soon as possible to answer your questions and provide the support you need.

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  • What is CAH?
    • General Information
    • Hormone Production of the Healthy Adrenal Gland
    • What Happens in CAH?
  • Emergency
    • Illnesses, accidents, and surgical procedures
    • Emergency kit
    • Adrenal crisis
  • Infancy
    • Diagnosis through newborn screening
    • Treatment of infants with CAH
    • Salt-wasting CAH
    • Tendency toward hypoglycemia in CAH
    • Specific aspects of diagnosing CAH in girls (surgery in early childhood)
    • Psychological support
    • Openness about the condition
  • Childhood
    • Treatment of CAH
    • Signs of Inadequate Hydrocortisone Adjustment
    • Therapy Monitoring
    • Laboratory Tests
    • Fear of Injections
  • Adolescents
    • CAH with Salt Wasting
    • CAH and Sports
    • Specific Considerations for Girls with CAH
    • Specific Considerations for Boys with CAH
    • Check-up Examinations / Treatment Plan
    • Medication Adjustment When Traveling Across Time Zones
    • School
  • (Young) Adults
    • Preventive Checkups
    • Transition
    • Family Planning
    • Heritability
    • Molecular Genetic Testing in CAH
    • Fertility as a Person Affected by CAH
    • From a Medical Perspective: Fertility in Women with CAH
    • From a Medical Perspective: Fertility in Men with CAH
  • Late Onset
  • About us
  • Contact
    • Contact Form
    • Contact for Specific Topics
  • Downloads and Links
  • Imprint